
Recently I was given the amazing opportunity to interview the incredible
Karen Simmons who is the creator and CEO of
Autism Today. She is a complete inspiration and I can't even believe I was given the honor to pick her brain a little bit! I was especially grateful because I wasn't able to attend the
conferences that they are having here in Vancouver on the 13th and
19th, which you can still get seats to if you are in the Vancouver area here! Without further adieu I want to bring to you the wonderful Karen Simmons!!! (applause)
1. What
were the first thoughts that lead to the creation of Autism Today? What was its “birth thought”?
Honestly,
getting the resources into the hands of all the many millions of parents out
there in the world who can’t afford to travel across the country to attend
conferences, or that don’t have the time to track down the many answers to
their questions is the main reason I started Autism Today. Our vision with Autism Today is to have a world
where people with autism are respected, loved, self-reliant, happy and
understood for who they are as a result of the strategies implemented by those
that love and care for them. Our mission
is that as the first and largest information website worldwide we provide the keys
to a treasure chest of affordable solutions and expertise for families,
educators and professionals right at their fingertips. Through a plethora of
conferences, products and services caregivers learn to empower those on the
spectrum through their lifespan so they can be their own personal best by
expressing their unique gifts, strengths and talents
I couldn’t imagine anyone not being able to
have the tools to help their child available to them. To me as a new mom at the time, the thought
of not helping my child was absurd. Even
to this day it astounds me that families still are struggling to get the
resources or understand about the importance of early diagnosis and
intervention which is the main key to helping your child through his or her
lifespan.
2. What is the most rewarding part of doing your
conferences? Is there one particular
story that stands out?
Helping
the parents understand how to help their children and to change the lives of
the autism family towards the better. I
remember, it just so happens, a mother at our 2007 Autism Biennial Vancouver
Congress who had just received the new diagnosis of autism for her child. She was devastated and didn’t know what to
do. She happened to hear about our conference
and convinced her husband to let her come.
The first day she was a mess and, however, by the end of the conference
she approached me, with tears in her eyes, and thanked me for hosting the
conference. Two years later at our 2009
conference she told me how the conference had changed their entire life and
without it she didn’t have any idea where they would be to this day. Her question to me was “How many other
families are out there that didn’t know about our conference or perhaps just
couldn’t afford to attend”? Their lives
and the life of their child would just not have anywhere near the same
opportunity to succeed.
Here’s an
example of what we also do and will be doing in your city. We will be back in your lovely city next week
for a one day workshop with world renowned Dr. Jed Baker who wrote several
books including The Social Skills Picture Book for all school ages and presents
all across North America. He is one of
the best presenters we have and it took me a long time to convince him to come
out to Vancouver because he doesn’t like to leave his family for periods of
time. He’s a true dedicated family man
that really believes in our kids. Anyway
he offers so many tools for parents and educators alike that it would be a
shame to miss him. Here’s a little bit
about the conference. Its called “A Social Skills Training Workshop for Kids with
Autism Spectrum Disorders, All Kids Can Succeed: Handling Challenging Behaviours
and Teaching Social Skills being held in Vancouver, BC this Thursday, April
19th, 2012 at the Norman
Rothstein Theatre – 950 West 41st Ave (at Oak Street)
Heres some of the benefits of attending the conference that
Parents, teachers and professionals will do.
They will:
o Learn how to prevent and manage
meltdowns or tantrums
o Learn strategies to teach verbal
and non-verbal students
o Find out how to develop an
effective behavior plan
o Become a facilitator to help
create peer acceptance
o Gain skills in teaching peers to
be more tolerant and supportive
o Inclusion Techniques for
creating lasting friendships
o Discover how to put together a
social skills training programs
o Case studies that show the
strategies in action
o Discover the reasons for social
skill deficits and disruptive behavior
3. As a daycare provider, what are some of the
best ways I can help accommodate an autistic child? (eg involving them in
activities , discipline, speech development etc….)
Certainly
the biggest challenges are around social skills and behavioral issues, so
understanding the child with autism and all the challenges that accompany them,
helps in knowing what to do in certain particular situations. Time outs are not
necessarily a good thing for discipline since kids with autism might even enjoy
them since they don’t like to interact with others as much. I
wrote a little booklet called “How to Plan the Perfect Party for Children with
Autism” which sheds a lot of light on things one can do when interacting with a
child with autism and am more than happy to share it if you’d like. YES!!!!
4. Do you find the school systems of today better
at accommodating autistic children than the past? Or are they still out of date
with the knowledge of the topics?
Of course
the school systems have certainly come a long way since the days Jonny and Alex
attended early school. Though
methodologies and teaching techniques differ a great deal from those days, what
remains the same is the passion, love and attention the teachers have and feel
for our children. They are in this field
for a reason and do their very best most times to help our kids to the best of
their ability. Jonny and Alex had early
intervention of sorts back in the day and of course time passes on and
everything changes. If they were in
school today they would certainly have more up to date behavioral and
developmental interventions, though I am not sure how they would turn out as a
result. You just never know.
5.
I know
Vancouver couldn’t possibly compare to your first conference location in
Honolulu but what have you enjoyed about our city here in Vancouver?
Are you
kidding? What’s not to absolutely love
about Vancouver? It’s one of my most
favorite cities with your beautiful waterfront, wonderful climate and gorgeous
mountains. I wish I could have had more
play time there and if we could do all of our conferences there it would be
great but we need to get the resources to all the folks everywhere so we go
where we can. Honolulu is also nice and
there are many families struggling for resources over there which is what we
look for when choosing a city to go to.
.
6. For parents who may be unfamiliar with some of
the warning signs of autism, to you, what would be some of the key ones?
Some of
the early warning signs to really pay attention to are lack of eye contact,
inappropriate social skills, spinning around and around, lining objects up,
repeating the same thing over and over like an echo or watching a movie over
and over again. Loss of speech or being
late in developing language is another sign.
The window to notice the above warning signs is around 2 -5 years old. Of
course autism is being detected earlier and earlier in children so the signs of
autism for particular age groups are different.
7. How has being a part of autism today changed
your life and the life of your families?
I have
been deeply involved with Autism Today since I first learned about my sons
diagnosis. By digging in and initially
getting past my own denial about the diagnosis I have learned a tremendous
amount about autism and have helped my family and others understand along the
way. If I had any regrets it would be
that I have taken a lot of time away from my own family and devoted it to Autism
Today and like any obsessive focus towards any particular career, there has
been the resentment from my family members towards my dedication towards Autism
Today. You might say I have two
families, my Autism Today family and my own family at home. Balance is a lesson I am always struggling to
learn within myself.
8.
What is
the best way to help a husband and wife stay connected to one another when they
have a child with autism in the family?
Never give
up on the relationship and don’t play games.
It is tempting when issues around the games we play as human beings like
the ego game, the blame game and the denial game. Always try to be bigger than the autism and
bring the love you have for each other as a couple into center focus. Like the oxygen mask on the plane is there
for the adult to put on first so the child can survive, you have to put the
oxygen mask on your relationship first before the child and be on the same page
as much as you possibly can for the child.
If you have any other questions or concerns I highly suggest you check out
Autism Today it is an AMAZING place to go and find information to any and all your questions.
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